2012 Year Of Action On Cancer
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Palliative and End of Life Care Network

Definition of End of Life Care

“End of life care is care that:

Helps all those with advanced, progressive and incurable illness to live as well as possible until they die. It enables the supportive and palliative care needs of both patient and family to be identified and met throughout the last phase of life and into bereavement. It includes management of pain and other symptoms and provision of psychological, social, spiritual and practical support."

Source: National Council for Palliative Care 2006

North West End of Life Care Pathway

End of Life Care Model

Palliative and End of Life Care Network

Goal

For people within Merseyside & Cheshire to be supported to die well in the place of their choice through integrated services.

Drivers

DH End of Life Care Strategy (2008); Improving Outcomes for Cancer ( 2011); NICE IOG Supportive & Palliative Care ( 2004);End of Life Care in Heart Failure(2010);Improving End of Life Care in Neurological Disease; End of Life Care in Advanced kidney Disease; Supporting People to Live and Die Well; a framework for social care at the end of life ( 2010)

Objectives

Ensure better treatment

End of life care (EolC) will be understood by both professionals and patients as the last 12 months of life in line with the North West model

The use of the North West EoLC model will be promoted in all care settings and disease groups with the aim of reducing hospital deaths by 10% by 2012. Patients with a long term condition identified as end of life will be placed on a supportive care register.

The social care framework for end of life will be promoted within Local Authorities as will the EoLC quality markers and NICE standards in all settings

Good practice will be shared and spread throughout the Network.

Patients will report an increased satisfaction in end of life care provision

Deliver care in appropriate settings

Continue to support the use of advance care planning which includes the use of the nationally approved EoLC tools in all care settings and disease groups

Build capability and capacity

Raise awareness of EoLC with health and social care professionals, voluntary and charitable organizations and the general public so death and dying will be a normal part of conversation and care planning

Mentor, support and educate EoLC clinicians and facilitators both in specialist and generalist roles so staff whether they work within the NHS, the Local Authority, private or voluntary sector will have the confidence and capability to care for patients at end of life

Develop robust information at Network level to support the commissioning of end of life care services

Deliverables

Each disease specific network to have within their work plan 2 priorities linked to end of life care

Local authority plans to include end of life care

Network facilitator education programme

Death, Dying and Loss Community engagement programme

Care home EoLC improvement programme

Network EoLC Multi Professional Education Training plan

End of Life Care quality survey

Measures

Reduction in the number of hospital deaths

Increase in the number of home deaths including care homes

Decrease in Length Of Stay (LOS) for end of life care patients in hospital

Increase in the uptake of end of life care tools in all settings

Increase in the number of people at end of life (EoLC)on practice or locality registers now known as electronic palliative care co-ordination system.

Care home EoLC improvement programme uptake

End of Life Care quality survey results

Palliative and End of Life Care Team Contact details

Kathy Collins Associate Director Palliative and End of Life Care Network
kathy.collins@mccn.nhs.uk

Tel 0151 201 4150 ext. 6225

Caroline Flynn
End of Life Care Lead for Community and Social Care Services
caroline.flynn@mccn.nhs.uk

Tel 0151 201 4150 ext. 6229

Elaine Owen
End of Life Care Lead for Acute and Specialist Services
elaine.owen@mccn.nhs.uk

Tel 0151 201 4150 ext. 6202