People will wish to be involved in research in different ways, at different levels and at different times. Appropriate support and information will be available to each individual to ensure that their role and contribution fits with what they, and the research team, aim to achieve.
Health service research needs the involvement of patients, carers and the public to ensure that the right questions are asked and the research benefits from the views, opinions and experiences of those affected by illness or particular conditions. This will help ensure research is relevant, applicable and value for money.
Involvement also provides opportunities to develop personally through learning new skills, sharing experiences and having your views heard.
To advance a programme of social research which comprises a number of inter-related research projects exploring issues such as:
The research programme will actively involve a wide range of people with different expertise, skills and knowledge:
Opportunities are available for members who are patients, carers or public to become involved in research. Involvement may be at a variety of levels for example:
There are opportunities to learn more about research and to gain the knowledge, skills and confidence to become involved as an active member of a research group. People will wish to be involved in research in different ways, at different levels and at different times. Appropriate support and information will be available to each individual to ensure that their role and contribution fits with what they, and the research team, aim to achieve. A variety of support is available including:
There are various routes through which you can become involved for example:
Within the Merseyside and Cheshire Cancer Network there are various research projects in development. For further information about the research projects and / or patient and public involvement in research within the Network please contact:
Lynda Appleton, Research Nurse, Clatterbridge Centre for Oncology NHS Foundation Trust,
Tel: 0151 334 1155 Ext. 5198, E-mail: Lynda.appleton@ccotrust.nhs.uk
Maria Flynn, Senior Lecturer, School of Health Sciences, University of Liverpool
E-mail:m.flynn@liverpool.ac.uk
INVOLVE
A national advisory group which is funded by the National Institute for Health Research (NIHR). Its role is to support and promote active public involvement in NHS, public health and social care research.
http://www.invo.org.uk
UK Clinical Research Collaboration (UKCRC)
http://www.ukcrc.org/patientsandpublic.aspx
People in Research
People in Research helps members of the public make contact with organisations that want to actively involve them in clinical research
http://www.peopleinresearch.org
DIPEx
DIPEx has a website of people's experiences of many different illnesses and health conditions. The website is aimed at patients, their carers, family and friends, doctors, nurses and other health professionals and is based on in-depth qualitative research carried out by the DIPEx Health Experiences Research Group at the University of Oxford
http://www.healthtalkonline.org/
NIHR Clinical Research Collaboration (NIHR CRC) Patient and Public Involvement Strategic Plan 2008 -2011
In April 2008, the NIHR CRC Board approved a three-year strategic plan to provide a framework for the NIHR CRC's future patient and public involvement activities. http://www.ukcrc.org/patientsandpublic/ppi/ppistratplan.aspx
Cancer Research UK
www.cancerresearch.org.uk
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